Firt 5 days of infusion at 200ML per with 500cc fluids before and after each infusion. Rate of infusion starts of at 12 slowly increasing to 37 max my body can take without blood pressure rising or having headaches. There was no fever or blood pressure problems. Except for it dropping down to 91/87. But overall it went well. Two days of headaches prior to infusion due to lack of sleep. Will keep y’all posted within a week to see if the increase of dosage and days helped control the spasms I’ve had one week prior to the next infusion.
December 2017 infusion
went well no problems. 5 days as usual
Janurary 2018 infusion
went well no problems. 5 days as usual.
February 2018 infusion
went well no problems 5 days as usual
All went well. Because of the storm, my IVIG was postponed on Friday to Monday the 28th but all went well. Still using the walker at home. And had only 1 episode so far. Will keep y’all posted
with my next IVIG in September.
September 11-15 is scheduled for my IVIG will keep y’all posted at the at the of the 5 day a session. Things went well no problems to report.
October 30- November 6 went well. No fever or chills but still in a wheelchair because of too many hits to the head.
Over the thanksgiving holiday, I spent that day and 5 more days in. I had a severe seizure triggered by a high fever related to pneumonia and laryngitis. I was quickly taken to the ER and kept in. My sons had to make the decision and I don’t regret it one bit. I came out just in time for my next IVIG the following Monday.
But because I had an appointment with my oncologist on Friday they started me on a Sunday thru Thursday. It went well no fever, BP and pulse was normal. My next IVIG falls on the Christmas week. We’ll see how that goes. Will keep y’all posted. IVIG will start on Sunday and Monday, resume on Wednesday, Thursday and Friday. Tuesday will be a day off for Christmas for the nurses.
my last visit with my neurologist he referred me out to another SPS specialist who’s name is Dr.Graynor. Still have yet for insurance approval. She would have more ideas that would work more than the IVIG and meds. Will mention cellcept and rituxan. I will keep y’all posted when I have that appointment.
I have an appointment scheduled with Dr.Graynor on March 20 at 7:45. The same day as my IVIG but earlier than March 2019. Will keep you all posted on this.
December 2018 went really good. i used my walker ther entire time at home versus using the wheelchair that i had been using for over a year.
New year and new me. IVIG went wonderful. no spasms or stiffness since the year started. So looking forward to a great atart for 2019
Also went well. seems like i’m having it twice this month. i had it late of January into early Feb and I'm having it again next week (24- March 1 2019) anywho, i’m not complaining. I‘M still having my PT and IVIG even with the catheter on, no more aqua therapy just land physical therapy and i still can do it because i’m not in the water, which we do walk on land. I’d like to thank the aqua therapy team over at Fukuji & Lum (here on Oahu, Hawaii) y'all did a wonderful job getting me ready by stregthening my legs for the land exercises.
Keep y'all posted on my PT. til than
today is the 25th and my first day of five sessions for this. Will keep y’all posted after the last infusion. Things went well no problems to report.
i was suppose to start march 18th but i had an appt on the 22 so infusion started on a sunday the 17th for my daughter, through tuesday and resumed on thursday and friday and things went well.
scheduled for April 8-12 will update you on these infusions but so far things are going well. Ivig will start on monday thru thursday and again on a saturday (13 my bday lol) because of family issues that have to dealt with in courthouse. But i will keep y’all posted on that outcome on both ivig and court.
update on IVIG:
Everything went well was able to finish all monday thru friday sessions. as far as my daughter she didn’t go to court because she had a set back on her mentality and what she did. she is safe and at home with me.
next IVIG is April 28, 2019-May 2,2019. I will update you all on the outcome. everything went well no problems to report.
FYI: IVIG has been working with no side effects just great outcomes
My next round of IVIG Monday-Friday will keep you all posted on the outcome. ivig went well with no problems. normal vital signs and 9 hours of infusion.
June 10-14, 2019
Sceduled for ivig scheduled. will keep yall posted on the outcome.
July 1-5, 2019
Scheduled for Mon-Fri will keep y’all posted after the week is over. this infusion went well.
July 23-27 (Tuesday-Saturday)update
I went to the ER to have my power port checked because when my nurse went access the port, pus came out and i went to the ER a little to late he gave me by IV antibiotics and one by mouth. They also did blood test and culture by blood and by site(pus drainage from the port) so i will my neurologist on August 2 to folllow up to remove the port and put in a new port on the other side of my chest. IVIG continued as planned via periphial needle until a port can be put in. will keep you all posted on the outcome after my appt with my neurologist.
I started to having IVIG every other week for 5 days straight for 8 hours each day. I have had 3 falls since i started this. But it takes some time for it to be in system consistently.
This month i have had 1 fall since starting IVIG. But its better than 3 falls, so you could say that i am better. This week is the last week of October treatments and i must say that i have'nt had any falls the last few weeks. Praise God and thank you Jesus and all your Angels that surround me all time.